Patient Voices: Shaping the Future of PNH Care

Opinion
Video

Panelists discuss how their lived experiences and insights as patients should inform research priorities, treatment development, and care delivery improvements while sharing hopes for a future cure that would eliminate ongoing disease management needs and allow greater life flexibility.

Video content above is prompted by the following:

  • What role do you think patient voices should play in guiding future advancements in paroxysmal nocturnal hemoglobinuria (PNH) care?
  • How do you imagine your life might change if there were a cure for PNH in the future?

This program was made possible with support from Novartis Pharmaceuticals.

Newsletter

Stay up to date on recent advances in oncology nursing and patient care.

Subscribe Now!
Recent Videos
4 experts in this video
4 experts in this video
Image of a woman with light brown hair wearing glasses with a blue background
Image of a woman wearing glasses in front of a blue background
Image of a woman with glasses in front of a blue background
Image of a man in a suit smiling in front of an Oncology Nursing News background
Image of a woman wearing a patterned shirt in front of a dark blue background
Photo of a woman wearing a blazer in front of an Oncology Nursing News backdrop
Related Content
Photo of a woman with brown hair and bangs, surrounded by a blue border

AE Education Aids Breast Cancer Decisions, Says Survivorship Expert

Michelle Kirschner, RN, MSN, ACNP, APRN-BC
June 30th 2025
Article

Planning for adverse effects early on helps patients prepare for what lies ahead, says Michelle Kirschner, MSN, RN, ACNP, APRN-BC

Oncology Nurses Provide Patients an Avenue to Supportive Care

Oncology Nurses Provide Patients an Avenue to Supportive Care

Diana Martins-Welch, MD
November 12th 2019
Article

Palliative care is often associated with a patient entering end of life treatment and giving up on their treatment, but that isn't the reality of what id can do for patients. And oncology nurses can help guide patients to the right supportive care for them.

New Findings Could Change the Everyday Treatment of Patients With Advanced Prostate Cancer

New Findings Could Change the Everyday Treatment of Patients With Advanced Prostate Cancer

Daniel J. George, MD
October 3rd 2019
Article

For patients with advanced prostate cancer, new findings from the CARD trial could change their daily treatment.

Adverse Events of CAR T-Cell Therapy

Adverse Events of CAR T-Cell Therapy

Sattva S. Neelapu, MD
July 28th 2019
Article

It is crucial for nurses to be aware of adverse events that can occur in patients who are receiving CAR T-cell therapy, explained one expert.

Prostate Cancer Diagnoses Decrease With Lenient Screening Recommendations

Prostate Cancer Diagnoses Decrease With Lenient Screening Recommendations

MaryBeth Freeman, MPH
May 8th 2019
Article

After the USPSTF advised against prostate cancer screening for all men, there was a decrease in the incidence of the disease.

Hyman B. Muss Discusses the Importance of Nurses in Treating Pregnant Women With Breast Cancer

Hyman B. Muss Discusses the Importance of Nurses in Treating Pregnant Women With Breast Cancer

Hyman B. Muss, MD
March 23rd 2016
Article

Hyman B. Muss, MD, professor of medicine at the University of North Carolina School of Medicine, discusses the vital roles that nurses play when it comes to treating pregnant women with breast cancer.