Supporting Caregivers While Patients Receive Cancer Care

In the complex landscape of cancer care, the patient is often at the center of attention, although an increasing number of oncology nurses are recognizing the critical role of family support in the treatment journey.

As they navigate the challenges of the disease, patients are not alone; their families are also deeply impacted, and their well-being is intertwined with the patient's.

“It takes a lot of support to get through that journey,” said Amy Schultz, RN, Gynecologic Oncology Nurse Navigator for the cancer institute at Allegheny Health Network Cancer Institute, in an interview with Oncology Nursing News. “There’s going to be ups and downs on that journey, for sure. It’s going to be a rocky road along the way.” This sentiment underscores the importance of a comprehensive approach to care that extends beyond the patient to encompass their entire support network. This can include the oncology nurse identifying a patient’s support system when they first meet, whether it be their spouse, children, siblings, or someone else.

Schultz added, “When I meet with them, I always make sure that I [tell] that support person, ‘This isn’t all about the patient; it’s also about you, too, and how are you doing through all of this….As the patient begins this journey, that were are going to support you also.’…because they have their own struggles with that cancer diagnosis.”

The Ripple Effect of Cancer

Cancer is far from an isolated experience. It’s a “family diagnosis,” Kathleen Robson, RN, Pancreatic and Liver Nurse Navigator for the Allegheny Health Network Cancer Institute, mentioned in the interview. The ripple effects of a cancer diagnosis can be profound, altering family dynamics, creating new challenges, and placing immense strain on caregivers.

“This takes a toll on them,” Robson said. As they manage the demands of caregiving with their personal and professional lives, their well-being may also be impacted.

Building a Supportive Network

Recognizing the critical role of family support, oncology nurses are taking steps to build a robust network around their patients. This involves identifying and engaging family members, friends, and community resources to create a support system that can help patients, and their loved ones navigate the challenges ahead.

Schultz urges patients to be open to accepting the help that caregivers offer.

She said, “I’ve had patients say, ‘People want to stop by and they’re bringing me food, or they want to do my laundry.’ And I’m like, ‘Let them do that because, one, it makes them feel good. And you need to rest.’ I think sometimes it’s getting everybody to know that it’s OK to open up to allowing other people to take care of you.”

Addressing the Unique Needs of Caregivers

Caregivers often experience a unique set of challenges that require specialized attention. They may feel overwhelmed, isolated, and depleted, both physically and emotionally. Oncology nurses can play a vital role in supporting caregivers by providing education, resources, and emotional support.

“I try to remind them that, that’s how you are right now, but there may come a time when you may feel differently,” Robson said. “Remember that the people that love you want to be part of your story, and they want to be involved. So have them do something for you, whether it’s as simple as…going to the grocery store, picking you up, or dropping you off at an appointment.” By anticipating the potential needs of caregivers and offering proactive support, nurses can help to prevent burnout and maintain the caregiver's well-being.

Communication Is Key

Effective communication is essential in providing comprehensive family care. By involving the entire family in the patient's care, nurses can foster a sense of collaboration and shared decision-making.

“I want you to call us, [the healthcare team], I want you to get an honest answer from the people who are actively involved in your care,” Robson said. “I don’t want you stewing overnight.” Encouraging open communication and providing opportunities for family members to ask questions can help to alleviate anxiety and build trust.

Overcoming Challenges

Providing care for the entire family is not without its challenges. Managing complex family dynamics, addressing strong personalities, and coordinating care among multiple providers can be daunting tasks. However, oncology nurses are rising to the challenge, recognizing the importance of a collaborative approach.

“It’s a constant collaboration with everybody,” Robson said. “The doors have to be open. And we really have to be honest about what we can and can’t do. And just letting caregivers know [that] you’re not by yourself. Please don’t think that. Understand [that] this is a team. Let’s work together to get you what you need.” By working together as a team, nurses can provide the best possible care for both the patient and their family.

The Road Ahead

As the field of oncology continues to evolve, the importance of family-centered care is becoming increasingly recognized. By adopting a holistic approach that addresses the needs of the entire family, oncology nurses can make a significant difference in the lives of their patients and loved ones.

By building strong support networks, providing education and resources, and fostering open communication, nurses can help patients, and their families navigate the challenges of cancer with greater strength and resilience.